Health Policy & Advocacy
Legislative Action Center
The APHON Legislative Action Center provides federal and state legislative information related to pediatric hematology/oncology patient care and nursing. Get involved by staying informed and taking action!
A quarterly offering from the Association of Pediatric/Hematology Oncology Nurses, the goal of the newsletter is to inform members about legislative and regulatory issues impacting the profession of pediatric hematology/oncology nursing and the patients we serve.
Sign-On letters are policy-oriented letters sent to members of Congress, congressional committees or federal agencies expressing the viewpoint of the signatories.
Alliance for Childhood Cancer
Protect Coverage for Children with Cancer and their Families
APHON joined members of the Alliance for Childhood Cancer in urging Congressional leaders to protect coverage for children with cancer and their families, as changes to the Affordable Care Act (ACA) and other health care programs are debated.
APHON Concerned with Provisions in Right to Try Legislation
APHON joined patient and provider groups urging Congress to facilitate discussion and consideration of alternative policies that would genuinely increase access to promising investigational therapies.
APHON Calls on Congress to Extend CHIP Funding
APHON joined other advocates for children and pregnant women in urging Congress to enact a five-year extension of the Children’s Health Insurance Program (CHIP) which provides high-quality, cost-effective coverage for low-income children and pregnant women in working families.
APHON Concerned with Changes to Medicaid
APHON joined other organizations with concern about potential changes to the fundamental structure and purpose of Medicaid.
APHON Supports Expanded Access Principles
As policymakers debate changes to the way in which unapproved therapies are accessed, APHON agrees that changes should adhere to the principles outlined the document.
American Academy of Pediatrics
APHON Supports BPCA/PREA Recommendations
APHON joined the American Academy of Pediatrics and other organizations in support of recommendations to strengthen the Best Pharmaceuticals for Children Act/Pediatric Research Equity Act.
Center to Advance Palliative Care
APHON Supports Recommendations for Pediatric Alternative Payment Model
APHON joined an initiative from the Center to Advance Palliative Care to provide recommendations to CMS on the development of a Pediatric Alternative Payment Model.
Nursing Community Coalition
APHON Concerned with Proposed Budget Cuts
APHON joined members of the Nursing Community in a statement expressing concerns with deep cuts to the Nursing Workforce Development Programs (Title VIII of the Public Health Service Act).
APHON Supports Fiscal Year 2018 Funding Request
APHON supported testimony provided by the Nursing Community to the U.S. House Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies requesting $244 million for the HRSA Nursing Workforce Development programs and $160 million for the National Institute of Nursing Research (NINR).
APHON Supports Title VIII Reauthorization
APHON joined with the Nursing Community in a statement commending the reintroduction of the Title VIII Nursing Workforce Reauthorization Act.
Certified Registered Nurse Anesthetists Support
APHON joined with members of the Nursing community in urging the Department of Veterans Affairs to include Certified Registered Nurse Anesthetists as part of its full implementation of the final rule pertaining the practice of Advanced Practice Registered Nurses.
Introductory Letter to Congress
Support of Policy Principles
APHON joined with members of the Nursing Community in a letter to the Presidential Transition Team outlining the core principles of the coalition and highlighting its policy agenda.
Patient Quality of Life Coalition
Reintroduction of the Palliative Care and Hospice Education and Training Act
APHON joined members of the Patient Quality of Life Coalition in support of the Palliative Care and Hospice Education and Training Act (PCHETA) which would improve the training of interdisciplinary health professionals in palliative care.
Many times, the best way to make an impact with a broad audience is to partner with a coalition that can help advance our priority issues. APHON belongs to the following coalitions: