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Health Policy & Advocacy

dcimageAPHON is committed to ensuring that Pediatric Hematology/Oncology Nurses are provided with the latest information on pending legislative and regulatory issues and activities impacting the profession and patients. For more information view our health policy agenda or contact us at This email address is being protected from spambots. You need JavaScript enabled to view it.


Legislative Action Center

The APHON Legislative Action Center provides federal and state legislative information related to pediatric hematology/oncology patient care and nursing. Get involved by staying informed and taking action!

Access the APHON Legislative Action Center

Advocacy Correspondent

A quarterly offering from the Association of Pediatric/Hematology Oncology Nurses, the goal of the newsletter is to inform members about legislative and regulatory issues impacting the profession of pediatric hematology/oncology nursing and the patients we serve.

2017 Issues

Winter Spring | Summer

2016 Issues

Winter Spring | Summer Fall

2015 Issues

Winter | Spring | Summer | Fall

2014 Issues

Winter | Summer Fall

Sign-On Letters

Sign-On letters are policy-oriented letters sent to members of Congress, congressional committees or federal agencies expressing the viewpoint of the signatories.

Alliance for Childhood Cancer

February 2017

Protect Coverage for Children with Cancer and their Families 

APHON joined members of the Alliance for Childhood Cancer in urging Congressional leaders to protect coverage for children with cancer and their families, as changes to the Affordable Care Act (ACA) and other health care programs are debated.

View support letter


September 2017

APHON Concerned with Provisions in Right to Try Legislation

APHON joined patient and provider groups urging Congress to facilitate discussion and consideration of alternative policies that would genuinely increase access to promising investigational therapies.

View support letter

APHON Calls on Congress to Extend CHIP Funding

APHON joined other advocates for children and pregnant women in urging Congress to enact a five-year extension of the Children’s Health Insurance Program (CHIP) which provides high-quality, cost-effective coverage for low-income children and pregnant women in working families.

View support letter

June 2017

APHON Concerned with Changes to Medicaid

APHON joined other organizations with concern about potential changes to the fundamental structure and purpose of Medicaid.

View support letter

APHON Supports Expanded Access Principles

As policymakers debate changes to the way in which unapproved therapies are accessed, APHON agrees that changes should adhere to the principles outlined the document.

View support letter

American Academy of Pediatrics

April 2017

APHON Supports BPCA/PREA Recommendations

APHON joined the American Academy of Pediatrics and other organizations in support of recommendations to strengthen the Best Pharmaceuticals for Children Act/Pediatric Research Equity Act.

View support letter

Center to Advance Palliative Care

April 2017

APHON Supports Recommendations for Pediatric Alternative Payment Model

APHON joined an initiative from the Center to Advance Palliative Care to provide recommendations to CMS on the development of a Pediatric Alternative Payment Model.

View support letter

Nursing Community Coalition 

May 2017

APHON Concerned with Proposed Budget Cuts

APHON joined members of the Nursing Community in a statement expressing concerns with deep cuts to the Nursing Workforce Development Programs (Title VIII of the Public Health Service Act).

View support letter

March 2017

APHON Supports Fiscal Year 2018 Funding Request

APHON supported testimony provided by the Nursing Community to the U.S. House Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies requesting $244 million for the HRSA Nursing Workforce Development programs and $160 million for the National Institute of Nursing Research (NINR).

View support letter

February 2017

APHON Supports Title VIII Reauthorization

APHON joined with the Nursing Community in a statement commending the reintroduction of the Title VIII Nursing Workforce Reauthorization Act.

View support letter

January 2017

Certified Registered Nurse Anesthetists Support

APHON joined with members of the Nursing community in urging the Department of Veterans Affairs to include Certified Registered Nurse Anesthetists as part of its full implementation of the final rule pertaining the practice of Advanced Practice Registered Nurses.

View support letter

January 2017

Introductory Letter to Congress

APHON joined with members of the Nursing Community in a letter to the House and Senate outlining the core principles of the coalition and highlighting its policy agenda.

December 2016

Support of Policy Principles

APHON joined with members of the Nursing Community in a letter to the Presidential Transition Team outlining the core principles of the coalition and highlighting its policy agenda.

View support letter

Patient Quality of Life Coalition

March 2017

Reintroduction of the Palliative Care and Hospice Education and Training Act

APHON joined members of the Patient Quality of Life Coalition in support of the Palliative Care and Hospice Education and Training Act (PCHETA) which would improve the training of interdisciplinary health professionals in palliative care.

View House support letter

View Senate support letter


Many times, the best way to make an impact with a broad audience is to partner with a coalition that can help advance our priority issues. APHON belongs to the following coalitions:

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