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Health Policy & Advocacy

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 Historical Sign-On Letters

Sign-On letters are policy-oriented letters sent to members of Congress, congressional committees or federal agencies expressing the viewpoint of the signatories.

APHON Supports Access to Care

December 2018

APHON joined a letter that supported H.R. 6836, the CLINICAL TREATMENT Act. This bill would require that Medicaid cover routine costs associated with participation in clinical trials. 

View supporting letter

American Academy of Nursing

February 2018

Position Statement from the American Academy of Nursing

APHON supported a position statement on full practice authority for advanced practice registered nurses written by the American Academy of Nursing.

View press release and full position statement

Alliance for Childhood Cancer

March 2018

APHON Supports Peer Reviewed Cancer Research Program

APHON joined the Nursing Community Coalition in asking the Department of Defense for funding for the Peer Reviewed Cancer Research Program and encourage Congress to ultimately establish a separate program for young adult, adolescent, and pediatric cancers. Any new developments that result from this research program will affect providers and patients alike, changing the way that cancer is treated and how to provide survivorship care to cancer survivors.

APHON Supports Cancer Funding

APHON joined the Nursing Community Coalition in encouraging the Senate Appropriations Subcommittee on Labor, Health & Human Services to increase funding for various programs and institutes (National Institutes of Health, National Cancer Institute). Specifically, the letter asks for a $2 billion increase for the National Institutes of Health plus a $215 million increase from 21st Century Cures funding for a total of over $38 billion and an over $400 million increase for the National Cancer Institute for a total of over $6.2 billion.

Nursing Community Coalition

November 2018

APHON Supports Title VIII Reauthorization
The Title VIII NURSE Corps Loan Repayment Program, one of the Title VIII Nursing Workforce Development Programs, was created to assist those nurses who are willing to work in the areas with critical staffing needs and depressed salaries. A last minute provision to add for-profit facilities in the program could put the entire program in jeopardy. APHON joined with the Nursing Community Coalition to support Title VIII Reauthorization as it currently stands. 

View the suppporting letter

January 2018

Title VIII Funding

APHON joined the Nursing Community Coalition in asking the House and Senate Appropriations Committees to fund each the Title VIII Nursing Workforce Development Programs and the National Institute of Nursing Research (NINR) with at least the levels proposed by the Senate's Labor, Health and Human Services, and Education Appropriations Subcommittee bill totaling $234.472 million for Title VIII programs and $155.210 million for NINR in FY 2018.

View the supporting letter

Title VIII Nursing Workforce Reauthorization Act of 2017

APHON joined the Nursing Community Coalition in asking the House Energy and Commerce Committee and the Senate Health, Education, Labor, and Pensions Committee to make the Title VIII Nursing Workforce Authorization Act of 2017 (HR 959 and S 1109, respectively) a priority during the second session of the 115th Congress. Support for this would reauthorize Title VIII funding through 2020.

View the supporting letter

Sickle Cell Disease Coalition

February 2018

Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act (H.R. 2410)

APHON joined the Sickle Cell Disease Coalition to support the Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act (H.R. 2410). This legislation would give the Centers for Disease Control the authority to carry out programs related to SCD, the complications related to the disease, and sickle cell trait.

View the supporting letter

Patient Quality of Life Coalition

September 218

APHON Supports Revisions to Payment Policies
APHON supported a letter that proposed changes to the Medicare Physician Fee Schedule and the Quality Payment Program in order to better support care for patients with serious illnesses and chronic conditions. 

View the supporting letter

APHON Supports Access to Pain Medications For Hospice and Palliative Care

APHON supported a letter to the Centers for Medicare and Medicaid supporting changes to opioid policy, but proposed several guiding principles to ensure that cancer patients and others with serious illnesses would be exempt from opioid exemptions. 

View the supporting letter

APHON Provides Comments to Senate HELP Committee on Opioid Crisis Response Act of 2018

April 2018

APHON joined the Patient Quality of Life Coalition in providing a response to the Opioid Crisis Response Act of 2018. The letter noted that PQLC supported efforts the efforts in the bill but asked for Congress to consider the needs of hospice and palliative care patients. 

View the supporting letter

 

Alliance for Childhood Cancer

February 2017

Protect Coverage for Children with Cancer and their Families 

APHON joined members of the Alliance for Childhood Cancer in urging Congressional leaders to protect coverage for children with cancer and their families, as changes to the Affordable Care Act (ACA) and other health care programs are debated.

View support letter

Healthcare

September 2017

APHON Concerned with Provisions in Right to Try Legislation

APHON joined patient and provider groups urging Congress to facilitate discussion and consideration of alternative policies that would genuinely increase access to promising investigational therapies.

View support letter

APHON Calls on Congress to Extend CHIP Funding

APHON joined other advocates for children and pregnant women in urging Congress to enact a five-year extension of the Children’s Health Insurance Program (CHIP) which provides high-quality, cost-effective coverage for low-income children and pregnant women in working families.

View support letter

June 2017

APHON Concerned with Changes to Medicaid

APHON joined other organizations with concern about potential changes to the fundamental structure and purpose of Medicaid.

View support letter

APHON Supports Expanded Access Principles

As policymakers debate changes to the way in which unapproved therapies are accessed, APHON agrees that changes should adhere to the principles outlined the document.

View support letter

American Academy of Pediatrics

April 2017

APHON Supports BPCA/PREA Recommendations

APHON joined the American Academy of Pediatrics and other organizations in support of recommendations to strengthen the Best Pharmaceuticals for Children Act/Pediatric Research Equity Act.

View support letter

Center to Advance Palliative Care

April 2017

APHON Supports Recommendations for Pediatric Alternative Payment Model

APHON joined an initiative from the Center to Advance Palliative Care to provide recommendations to CMS on the development of a Pediatric Alternative Payment Model.

View support letter

Nursing Community Coalition 

May 2017

APHON Concerned with Proposed Budget Cuts

APHON joined members of the Nursing Community in a statement expressing concerns with deep cuts to the Nursing Workforce Development Programs (Title VIII of the Public Health Service Act).

View support letter

March 2017

APHON Supports Fiscal Year 2018 Funding Request

APHON supported testimony provided by the Nursing Community to the U.S. House Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies requesting $244 million for the HRSA Nursing Workforce Development programs and $160 million for the National Institute of Nursing Research (NINR).

View support letter

February 2017

APHON Supports Title VIII Reauthorization

APHON joined with the Nursing Community in a statement commending the reintroduction of the Title VIII Nursing Workforce Reauthorization Act.

View support letter

January 2017

Certified Registered Nurse Anesthetists Support

APHON joined with members of the Nursing community in urging the Department of Veterans Affairs to include Certified Registered Nurse Anesthetists as part of its full implementation of the final rule pertaining the practice of Advanced Practice Registered Nurses.

View support letter

January 2017

Introductory Letter to Congress

APHON joined with members of the Nursing Community in a letter to the House and Senate outlining the core principles of the coalition and highlighting its policy agenda.

December 2016

Support of Policy Principles

APHON joined with members of the Nursing Community in a letter to the Presidential Transition Team outlining the core principles of the coalition and highlighting its policy agenda.

View support letter

Patient Quality of Life Coalition

March 2017

Reintroduction of the Palliative Care and Hospice Education and Training Act

APHON joined members of the Patient Quality of Life Coalition in support of the Palliative Care and Hospice Education and Training Act (PCHETA) which would improve the training of interdisciplinary health professionals in palliative care.

View House support letter

View Senate support letter