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Parent-Child Communication Webinar Archive

Parent-Child Communication and Testing for Cancer Predisposition

Obtaining Continuing Nursing Education (CNE)

Viewers are eligible to receive 1 CNE by listening to the program and successfully completing an online posttest and evaluation (free for members, $15 for non-members). Anyone that completes the entire webinar is eligible to receive contact hours.

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It is estimated that 20% of individuals with Li-Fraumeni syndrome (LFS) will be diagnosed with cancer before 20 years of age; however, it is not yet possible to determine when and in whom cancer will develop. Thus, there is life-long uncertainty associated with LFS and this uncertainty is the focus of much of the counseling and medical management of LFS patients.

To increase understanding of the challenges inherent in the testing of children for an underlying cancer predisposing condition, we explored parent-child communication. This qualitative study interviewed 14 families with a LFS history who proceeded with genetic testing of their child/children. This presentation will describe the factors that influence when parents decide to initiate a conversation about the genetic testing process and the subsequent test results with their child/children, barriers and/or facilitators to disclosure conversations, and the manner in which parents communicated the testing results.


Belinda Mandrell, PhD RN CPNP
Pediatric Nurse Practitioner
St. Jude Children's Research Hospital
Memphis, TN


  1. Describe factors that influence when parents decide to initiate a conversation about genetic testing and the subsequent results.
  2. Describe the barriers and facilitators parents identified in proceeding with testing and disclosure.
  3. Identify the most common gram positive drug resistant organisms encountered in children with hematologic or oncologic disorders, and new pharmacologic therapies for managing drug resistant.
  4. Describe the parental method of communication when disclosing results to their child/children.
  5. Discuss implications for nursing practice.

Identified Learning Gaps

As a result of attending this activity, the learner will be able to demonstrate an increase knowledge base in:

  • New and innovative therapies in hematology, oncology and hematopoietic progenitor cell transplant
  • Current trends in hematology/oncology and hematopoietic progenitor cell transplant
Learning Outcomes
  1. The learner will be able to identify innovative strategies essential for managing the challenges facing pediatric hematology/oncology nurses and the patients we serve.
  2. The learner will demonstrate increased knowledge related to the care of children, adolescents and young adults with hematologic or oncologic disorders.

The measurement of these outcomes will be evidenced by evaluations and post testing.

Accreditation and Disclaimers

Individual Learning Needs Assessment (ILNA) Coding

The program content has been reviewed by the Oncology Nursing Certification Corporation (ONCC) and is acceptable for recertification points.

CPHON® Blueprint: Professional

BMTCN® Blueprint: Professional

ONCC review is only for designating content to be used for recertification points and is not for CNE accreditation. CNE programs must be formally approved for contact hours by an acceptable accreditor/approver of nursing CE to be used for recertification by ONCC. If the CNE provider fails to obtain formal approval to award contact hours by an acceptable accrediting/approval body, no information related to ONCC recertification may be used in relation to the program. Have questions regarding the CPHON® ILNA Coding? Please visit the ONCC website or call them toll-free at 877.769.ONCC (US and Canada only).

Accreditation Statement

The Association of Pediatric Hematology/Oncology Nurses (APHON) is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center’s Commission on Accreditation.

Faculty Disclosure of Relevant Financial Relationship(s)

A staff member, volunteer (faculty), or their family member who has an affiliation with a commercial company must declare that relationship in advance of involvement with an education activity that could be used as a forum to promote the interest of that company and its products. The material presented in this activity represents the opinion of the presenters and not necessarily the views of APHON.

Faculty and nurse planners report no conflict of interest with the content of this activity.

Off-Label Use

No off-label use was discussed.