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Art & Science of Pediatric Palliative Care Workshop

April 13-14, 2018 | Hyatt Rosemont | Rosemont, IL

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Join the Association of Pediatric Hematology/Oncology Nurses in Rosemont for our two day workshop, Art & Science of Pediatric Palliative Care. This event was developed in response to high demand from our membership and industry to provide exceptional end of life care for pediatric patients.

This workshop will prepare nurses caring for pediatric patients, the tools necessary to provide basic primary palliative care. The goal of this workshop is to address knowledge, attitudes and skills in promoting comfort and optimizing quality of life for children from the time of diagnosis throughout treatment and into survivorship, or death, if that is the outcome.

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Meet the Workshop Speakers


Nurse Practitioner
Children's National Health Systems
Washington, District of Columbia

Lafond DeborahDr. Deborah Lafond has over 25 years experience in pediatric hematology/oncology nursing. She received her Doctorate of Nursing Practice in 2012 from the University of Maryland. Her capstone project investigated the feasibility of early integration of palliative care to promote comfort and coping for children, adolescents and young adults undergoing hematopoietic stem cell transplant. She is a Cambia Health Foundation Sojourns Scholar in palliative care, where her work focuses on primary palliative care education and mentoring for the bedside clinician. Outcomes of this project have included early integration of palliative care for children with high-risk cancers and several innovative quality improvement projects related to patient and family education for this population. Dr. Lafond is the immediate past chair of the APHON Evidence-Based Practice and Research Committee and serves as a co-chair of the Hospice and Palliative Care Nursing Association Research Special Interest Group.


Nurse Practitioner
OHSU Doernbecher Children's Hospital
Portland, Oregon

Perko KathleenKathy Perko received her BSN from the University of Portland, Oregon and started her nursing career at the Children’s Hospital in Seattle. She spent eight years there-focusing in pediatric oncology with a special interest in children with brain tumors. She received her MS/PNP from the University of California-San Francisco with a focus on supporting children and families through the end of life.

Kathy returned to the Pacific Northwest and has been working in Portland for the past 19 years. She transitioned from pediatric oncology to palliative care over the past years, was a founding member and is the Program Director of Bridges Palliative Care Program at Doernbecher Children’s Hospital. The Bridges Program sees patients from prenatal diagnosis through young adulthood.

Kathy is a recipient of a Cambia Sojourns Award. She is currently serving on the Oregon Palliative Care and Quality of life Interdisciplinary Advisory Council representing the needs of children and families. Kathy is a gifted educator, combining clinical practice and child and family stories to inspire those learning about pediatric palliative care. She is a frequent speaker for medical and nursing students as well as providing community-based education. She is on the national faculty for ELNEC and EPEC-Pediatrics.

Janice Nuuhiwa, MSN APN/CNS CPHON®

Staff Development Specialist
Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois

Nuuhiwa JaniceJanice Nuuhiwa is a Staff Development Specialist at Ann & Robert H. Lurie Children's Hospital of Chicago. Janice has 16 years of nursing staff development experience, with a particular interest in the elements of emotional intelligence, professional boundaries, self-care, resiliency and promoting professional wellness for the direct patient care provider to prevent burnout, compassion fatigue, moral distress and vicarious trauma.

Accreditation and Disclaimers

The Association of Pediatric Hematology/Oncology Nurses (APHON) is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

Participants will be awarded 15 CNE's upon completion of the entire workshop, post-test and evaluation.

CNE certificates will be available to print online at the conclusion of the conference. You should be aware of the continuing education requirements of your state board of nursing, especially for those states in which continuing education is mandatory.

Learning Gap

Description of current state:
Innovative models are needed to increase access to palliative care services and continuity across the spectrum of care, and to support the bedside clinicians providing direct primary palliative care

Description of desired/achievable state:
Nurses will begin to utilize the precepts of palliative care effectively in their primary bedside clinical practice in caring for neonates, children, adolescents, young adults with hematologic and oncologic serious illnesses and their families, from the time of diagnosis through end of life and bereavement

Identified Gap:
The field of palliative medicine is relatively new to healthcare and many clinicians lack understanding of the major concepts & practices, especially in pediatric hematology/oncology. Clinicians lack understanding of how to integrate the tenets of palliative care concurrently with curative intent therapies.

The educational content in this program is designed to help close this identified learning gap by addressing gaps in knowledge and skill.

Learning Outcome

The learner will be able to identify innovative strategies essential for nurses to integrate primary palliative care into the plan of care for children, adolescents, and young adults with hematologic and oncologic serious illness and their families for promotion of comfort and to optimize quality of life.

The measurement of this outcome will be evidenced by pre and post testing as well as the results of 30, 60 and 90 day surveys.

Pharmacology Content

Sessions indicated as having pharmacology content as calculated by the APHON Palliative Care Planning Committee must be submitted to your state’s nursing board. APHON does not award pharmacology credit. APHON recommends that attendees retain a copy of the program guide for supportive documentation. Please note that you may not apply nursing CHs toward pharmacology content; the content may be applied in only one area - nursing contact hours or pharmacology content.


A staff member, volunteer (faculty), or their family member who has an affiliation with a commercial company must declare that relationship in advance of involvement with an education activity that could be used as a forum to promote the interest of that company and its products. The material presented in this activity represents the opinion of the presenters and not necessarily the views of APHON.

There are no disclosures to report for this activity.

ONCC Official Statement and Disclaimer

Individual Learning Needs Assessment (ILNA) Coding

The program content has been reviewed by the Oncology Nursing Certification Corporation (ONCC) and is acceptable for recertification points. Nurses attending the workshop may apply 15 points to any of the following CPHON ILNA categories: symptom management, psychosocial, end-of-life or professional.

ONCC review is only for designating content to be used for recertification points and is not for CNE accreditation. CNE programs must be formally approved for contact hours by an acceptable accreditor/approver of nursing CE to be used for recertification by ONCC. If the CNE provider fails to obtain formal approval to award contact hours by an acceptable accrediting/approval body, no information related to ONCC recertification may be used in relation to the program. 

General Workshop Information

The APHON Art & Science of Pediatric Palliative Care Workshop is a nonsmoking event. Infants and children are not allowed in sessions. Mobile devices must be turned on vibrate during educational sessions. Please be courteous to your fellow attendees. Dress is business casual. As in past conferences & workshops, a professional photographer may take photos of attendees at the workshop. These photos are for APHON use only and may appear on APHON's website, in printed brochures, or other promotional materials. Attendee registration grants APHON permission and consent for use of this photography.

To learn more about the event, check out the workshop schedule or plan your trip!