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Art & Science of Pediatric Palliative Care Workshop

April 13-14, 2018 | Hyatt Rosemont | Rosemont, IL

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Schedule of Events

Friday | Saturday

Friday, April 13

7:30–8:00 am — Registration Open

8:00–8:30 am — Orientation to Workshop

  • Identification of learner needs.
  • Overview of the 2-day workshop.

8:30–9:15 am — Palliative Care: Understanding the Myths

  • Definitions of palliative care using the WHO, AAP, IOM, and others.
  • Social and economic forces influencing pediatric palliative care.
  • Discussion of partnerships of the interdisciplinary team in providing care for children with life-threatening illnesses and their families.
  • Describe the role of the nurse in providing quality palliative care for children and families.
  • Identify changes in society, health care economics, and service delivery that necessitate improved professional preparation for palliative care.

9:15–10:30 am — Ethical Challenges & Moral Distress

  • Define the role of the nurse in supporting ethical practice in palliative care for children.
  • Explain ethical issues and dilemmas that may arise in palliative care for children.
  • Apply ethical principles utilized in addressing palliative care dilemmas, including models for case presentation and use of ethics committees.

10:30–10:45 am — Break with Exhibitors

10:45–11:30 am — Spirituality

  • Identify dimensions and influence of culture and spirituality on pediatric palliative care.
  • Discuss beliefs regarding death and dying families held by various cultures and religions.
  • Discuss cultural and spiritual factors which may affect the ability to communicate effectively with patients and families facing the end of life.
  • Identify the components of a cultural and spiritual assessment of children and families.

11:30 am–12:30 pm — Advanced Care Planning

  • Define the similarities and differences between advance care planning, advanced directives and Medical Orders for Life-Sustaining Treatments (MOLST)/Physician Order for Life-Sustaining Treatments (POLST).
  • Discuss and practice strategies for children, adolescents, and young adults to discuss and document goals of care.
  • Discuss and practice strategies for non-verbal and neurologically impaired children, adolescents and young adults to discuss and document goals of care.

12:30–1:30 pm — Lunch with Exhibitors

1:30–2:15 pm — Resiliency & Self-Care

  • Define resiliency characteristics.
  • Identify methods for building resiliency.

2:15–3:30 pm — Self-Care in Action — Breakout Sessions

Participants will participate in self-care activities including coloring, story-telling, and aromatherapy.

3:30–3:45 pm — Break with Exhibitors

3:45–4:45 pm — Breakout Sessions

Integrative Therapy at the Bedside

  • Discussion of integrative therapies appropriate for children, adolescents and young adults with serious hematologic and oncologic illnesses to promote comfort and optimize the quality of life.
  • Skills lab with hands-on activities including massage, acupressure, aromatherapy, and mindfulness-based stress reduction.

Perinatal and Neonatal Palliative Care

  • Developmental considerations in caring for neonates with life-threatening illnesses.
  • Discuss barriers to perinatal palliative care and successful strategies to overcome them.
  • Identify specific clinical interventions that influence support during pregnancy, intrapartum, and after the infant’s death.
  • Describe the unique aspects of and interventions for perinatal/neonatal bereavement.
  • Identify newborns who should receive palliative care.
  • Describe the process for redirection of medical support in the NICU and how to plan for the transition to hospice if the infant does not die.
  • Describe the nurse’s experience in caring for the perinatal and neonatal populations, including the concept of moral distress.

4:45–5:00 pm — Wrap Up & Reflections

  • Identify one to two key take-home messages from the discussion of the day.
  • Review of needs assessment and additional learning needs identified.
  • Review of the next day schedule.

Saturday, April 14

7:30–8:00 am — Coffee with Exhibitors

8:00–8:30 am — Announcements & Thoughtful Reflections

8:30–11:45 am (Break with Exhibitors 10:00–10:15 am)

Breakout Sessions

Pain and Symptom Management 101

  • Identify barriers to adequate pain relief in palliative care.
  • List components of a thorough pain assessment.
  • Describe pharmacological and non-pharmacological therapies used to relieve pain.
  • Identify common symptoms in children with serious hematologic and oncologic illnesses.
  • Identify potential causes of symptoms.
  • Describe the assessment of these symptoms.
  • Describe interventions that can prevent or diminish symptoms.

Advanced Pain & Symptom Management

  • Describe evidence-based and best practice strategies for advanced pain and symptom management.
  • Discuss best practice recommendations for use of opioids, including the rationale for medication selection, novel routes of administration, opioid rotation and contraindications.
  • Explain how to use adjuvant analgesia for management of neuropathic pain and complex pain.
  • Describe pharmacological and non-pharmacological pain and symptom management at end of life.
  • Discuss guidelines for palliative sedation at end of life.
  • Identify ethical decision making frameworks and strategies for complex pain and symptom management in palliative care.
  • Describe strategies for addressing chronic complex pain.
  • Discuss strategies for managing opioid-induced hyperalgesia.

11:45 am–12:45 pm — Lunch with Exhibitors

12:45–1:45 pm — Parent Perspective

  • Identify characteristics children/families expect of healthcare professionals in caring for them in this setting.
  • Define loss, mourning, grief, and bereavement as applied to pediatrics from the family’s perspectives.

1:45–2:15 pm — Reflections & Debriefing

  • Identify emotions that surfaced in hearing the story of a family and discuss strategies for self-care to process these emotions.
  • Identify three factors that influence communication in the palliative care setting.

2:15–2:30 pm — Break with Exhibitors

2:30–3:15 pm — Complex Chronic Care

  • Discuss chronic pain and symptom prevalence and pathophysiology in children.
  • Appreciate that different chronic complex syndromes are considered manifestations of an underlying vulnerability rather than a separate disorder.
  • Stress the importance of a rehabilitative, interdisciplinary team approach.
  • Discuss the impact on family caregivers of children with chronic complex medical conditions.

3:15–4:15 pm — Communication Opportunities & Challenges

  • Discuss three aspects of excellent ongoing communication with the interdisciplinary team, the child, and the family throughout the palliative care period.
  • Identify three factors that influence communication in the palliative care setting.
  • Describe key factors in communicating bad news.

4:15–4:45 pm Making it Real: Bringing Back to Your Hospital

  • Discussion of different models of palliative care service structure.
  • Identify barriers to quality pediatric palliative care.
  • Reflections of the importance of primary palliative care to the hospitals’ strategic plan and ANCC Magnet program.
  • Opportunities for engagement of bedside clinicians in supporting the strategic plan.

4:45–5:00 pm — Wrap Up & Reflections

  • Identify one to two key take-home messages from the discussion.
  • Review of needs assessment and additional learning needs identified.